Erythromelalgia Awareness

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Erythromelalgia (EM) is a painful disease characterized by burning pain in the limbs, face, and other parts of the body with severe redness and swelling. This page includes several links and information on the disease.

WE HOPE THAT OTHER FIRE DEPARTMENTS IN THE AREA WILL JOIN THE METHUEN FIRE DEPARTMENT IN RAISING AWARENESS FOR ERYTHROLMELALGIA.

Methuen native Paula Corey suffers from EM and has become the foremost area advocate for education and awareness. She relates, "Those who suffer from EM feel as if they are burning alive. Some have committed suicide from the burning pain and no help. There are many children that have EM, and some are born with it. There is no cure. Many of us do not know why we have EM. Some people inherit EM and have a mutated gene. Others have it secondary to proliferative diseases such as blood cancers, auto-immune diseases, MS, and cancer chemo treatments. I was sick many years prior and still am daily suffering from fevers, severe pain, severe fatigue, and a bunch of odd symptoms, some of which have attacked organs. No one knows why. Education and awareness can result in funding for research and a cure."

In May of 2018, Paula hosted an awareness day for Erythromelalgia at the State House in Boston. Other sufferers of EM were present along with those supporting the cause or just wanting to learn about Erythromelalgia. Governor Baker proclaimed the month of May to be Erythromelalgia Awareness Month. May of 2019 is Erythromelalgia Awareness Month with the theme of "It's Time to Put the Fire Out!"

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The Methuen Fire Department is joining Paula and her husband Tony in their quest to make people aware of EM. We have installed two powerful red lights illuminated each evening throughout May outside our Central Fire Station on Lowell St. in our monument and memorial area. Methuen Fire Chief Tim Sheehy states, “We are happy to support Paula and so many others who struggle with EM. It is our hope that other area Fire Departments will join us in raising awareness for this disease.” Adds Paula, "So many people contact me weekly around the world that did not know they had EM and now do so they can start seeking treatment options. I hope for a cure and I am not sure it will be in my lifetime, but seeing the children suffer, I will do everything I can to see that they have a cure in their lifetime."

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Erythromelalgia Association Web Page

Erythromelalgia Brochure

PAULA COREY INFORMATION

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Paula Corey's Facebook Page

Paula Corey Video of Visit with Yale University EM Specialist Dr. Stephen Waxman

Paula began using Bob's Protocol that helped her. She decided to make a video of the protocol to help others. Says Paula, "There are five of us in the video giving our testimonies on how the protocol has helped us. The video also includes Bob who shared his experience creating the protocol. I also sent the video to doctors. SOME OF WHICH ARE ALREADY TELLING THEIR PATIENTS TO TRY. LINK TO VIDEO OF BOB'S PROTOCOL

MEDIA COVERAGE OF EM

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2017 FOX25 Video on EM

MethuenLife Magazine Story on Paula Corey, October 2016

Eagle-Tribune Story on Paula Corey, August 2017

We hope that those who suffer from EM, perhaps not even knowing it, will seek and find the help that they need. If anyone suffers from these symptoms, please bring the TEA brochure to your doctor to talk about Erythromelalgia.

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If anyone needs help, Paula offers her email: paulawithem@gmail.com or you can message her through her Erythromelalgia Awareness Page at https://www.facebook.com/PaulaWithErythromelalgia/